As mom continues her decline in her mental and physical abilities, I find the changes less and less surprising and we actually get into this routine, if you will, of not knowing what to expect. While at first, I was more shocked at every turn, trying to bring her back or trying to teach her how to cope, I find myself more accepting of the changes. I'm realizing that you can't teach at this stage. She can say, "thank you, for helping me" and "I'll do that," but she does not retain the memory. What I do find surprising is that she remembers how we keep telling her that pictures are paper. But it does not change how she thinks about them. She'll say, "I'm tired of hearing that," and keep treating them as visitors.
There are times I just have to give myself the freedom to laugh. Last week, after spending half a day with her, convincing her to get dressed, doing laundry, cleaning her fridge and secretly taking care of or disposing of food she had gathered under the couch, I started imagining a film crew following us around and I laughed until I cried.
She called me into the bathroom where she was supposedly getting dressed, pointing at the mirror, she said to me, "I can't tell who it is, if it's your daughter or your granddaughter, but she is always greeting me when I come in here, and smiles at me." I patiently told her it's a mirror and that she was looking at herself. (I digress ... I am still trying to teach her.) She ignored what I said and went on to tell me in animated fashion that they always wear the same thing and that they then laugh at each other.
One of her physical weaknesses is that she is getting unsteady on her feet and easily loses her balance. A few weeks ago we asked them to come join our family for a picnic at the park across the street from where they live. With some help, they made it to the picnic site. When we got there with the food, she was on the blanket face to face with Jack. At 82, other healthy women would say they cannot get down on a blanket but mom does not realize this, and she was down on all fours, trying to get low enough to talk to him. It ended up being a highlight of their week, seeing the children and eating chicken and Rollkuchen.
While it sometimes is easy to focus on the handicaps, things we can't comprehend and hard decisions to be made, it is our simple spontaneous drop in visits and plans to include them that still bring delight to both mom and Abe. They are the things that keep relationships as open as possible and are helping me learn to walk a care giving role that I never would have seen myself as being able to do.
For now I see a bitter sweet lesson in how the deception in the mirror smiles at her and gives her joy, because she chooses to smile.

15 comments:
Oh my, Anneliese. What contrasts you are facing with your mom's condition. The story she related about the mirror made me tear up and smile. The story of her being on all her knees with Jack and yet needing help to get to the site is bittersweet. I am praying for you and your family as you make this journey.
What a difficult journey, and yet, your mother is full of smiles and engaging with little ones and friends in the mirror. A heartbreakingly lovely post.
Gently told story of life with a love one whose mind is being erased by dementia. If anyone desires to learn patience...learn about what is a soul verses a brain, tend a loved one with dementia. Well done daughter. Love from a daughter who has completed a similar journey.
Well said and shared Anneliese. May God continue to give you strength for this journey and a welcome smile.
Thank you for sharing these thoughts & moments with your readers. How blessed your Mom is to have a loving, caring daughter & you to have your Mom still. It is a sad journey but oh, the joy in knowing where your Mother is going, eventually. I do not have alot of experience with dementia. My wonderful Mother-in-law passed away in a Salvation Army care facility where she received amazing care. Her memory slowly left her & it was sad to see. I think you have to somehow step into where they are. When your Mom talks about the person in the mirror, why not tell her that yes, it is her grandaughter (or whoever she thinks it is), aren't they beautiful & they are so happy to see her & spend time with her. How much they love her! You really can't make sense of these kind of situations. When I was visiting Mom one time, a gruff gentleman sitting at another table, said, "Would you call my Mother. She's coming to pick me up." I was quite surprised but replied, "Yes, I'll call her right now. What's the phone number?" He immediately gave me a number as I left the dining room. Perhaps some would say that was the wrong thing to say to him, but he was happy & I hope thinking about his Mom coming to get him.
My Mom is 90 & in good health but I am noticing some things with her memory too. She has started saying that it makes her sad that she won't live to see her great-grandchildren grow up, see who they marry etc. I just remind her, but think of where you're going Mom. I'm sure this isin't all that helpful to you but I thought I would share these thoughts.
Blessings to you,
Sharon
Hi Anneliese,
Part of my morning routine includes checking out the MGCC website, as well as the blogs.
Whenever you write about your mom and her journey with dementia, I think of my mom....especially when you mention her reaction to pictures and photos of people. My mom did the exact same thing...it got to the point that we had to remove all family photos from her walls and surroundings, because she was worried about feeding them all, and where would they sleep?:) We found it easiest just to take the photographs away, and ease that stress for her. You are so right about just accepting all these things that are happening to your mom...acceptance, finding humour in some of these bizarre situations, and just continuing to show love to her, as you are doing, are key ways to make the journey bearable....maybe even joyful! My mom passed away this past December at the age of 95, and we cherish every moment we had with her.
Blessings!
Karin in Winnipeg
Thank you, my blogland friends ... you are dear in sharing of your own experiences. I had never heard of someone else having the photo problem and you are the first to tell me of similar tendencies in your mom, Karin. I have had to remove all the photos on the fridge. The photos in the TV room do not bother her, as she thinks they are simply joining them for the "show" ... but, when in the kitchen, they obvioulsy want to, and have to eat. The photos in the bedroom may have to go next, as they are watching her get dressed. =)
In all of this, I am learning what to say, maybe a bit on the slow side, because this is my mom (whom I know like the back of my hand) playing "tricks" on me. That is what it feels like,
and you all know what I mean.
I think it's a gift that she sees that person in the mirror as a friend she can laugh with. Honestly, a gift. xxx Sharon
This post really touched my heart, and also made me smile, as you try to make the best of a most painful situation. I can't imagine how difficult it is for you as a daughter, to walk this journey. On Sunday evening, I sat with a lady at a dinner I attended, and she poured out her heart to me, about her husband and his most painful Alzheimer's journey, in his mid 70s. It is so bad now, that he pushes her away whenever she comes near to him, because he does not know her. I moved from her end of the table, after our lengthy conversation, and sat down by another couple in their mid 50s. She told me sometime into the conversation, that she had just been diagnosed with Alzheimer illness. Oh, how my heart broke. You all have such a trying and difficult journey! Thank you so much for sharing your heart here.
I just love that picture of your Mom and Jack. What a treasure. I think what I love about you telling your stories is that even though it is so hard, you tell it with such love and tenderness.
Anneliese - I love that you are journaling your thoughts and sharing them with others. Although I have not yet had to deal with Alzheimers in my family, I can see that your openness in sharing would be so affirming to those who do. I also see much love and tenderness in your stories of your mom and commend you for sharing your heart with such honesty and sensitivity.
That mirror thing must be one of many disconcerting behaviours, and I also find it delightful. - Kate
So glad you are all choosing to smile! Thanks for sharing this part of your journey with us all...so beautifully. Love that photo of your mom face-to-face with Jack!
I am so touched each time I hear you tell of 'the now' with your mom. How God blessed you and your mom with an incredible relationship over the years and how you now in this change are able to smile and even laugh with her even in the sorrow of her slipping from understanding to a fog that is not easy for any of us to really comprehend. The beauty of a tender hearted daughter is does look so lovely on you. Thank for letting us cry, pray, smile and even laugh with you.
What a precious picture of your Mom with Jack......and I love the fact that when she smiles at the friend in the mirror, that person smiles back and gives her joy. What an incredible life lesson.....when we choose to smile, to choose joy, those around us are touched to do the same.
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